An effort to improve the collection of patient-generated data: readability and understandability of patient-reported outcomes measures in a survivorship cohort.
Fiche publication
Date publication
mars 2024
Journal
Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation
Auteurs
Membres identifiés du Cancéropôle Est :
Pr GUILLEMIN Francis
Tous les auteurs :
Chiodi C, Epstein J, Arvis J, Martin E, Barbier A, Di Meglio A, Gillanders E, Jacob G, Menvielle G, Everhard S, Guillemin F, Luis IV, Franzoi MA
Lien Pubmed
Résumé
In this study, we evaluated readability and understandability of nine French-language Patient-Reported Outcome Measures (PROMs) that are currently used in a contemporary longitudinal cohort of breast cancer survivors as part of an effort to improve equity in cancer care and research.
Mots clés
PROMs, PROs, Patient-reported outcome measures, Readability, Survivorship, Understandability
Référence
Qual Life Res. 2024 03 5;: