Important issues in proposing autonomy training in home parenteral nutrition for short bowel syndrome patients: a qualitative insight from the patients' perspectives.
Fiche publication
Date publication
février 2024
Journal
European journal of clinical nutrition
Auteurs
Membres identifiés du Cancéropôle Est :
Pr GUILLEMIN Francis, Pr QUILLIOT Didier
Tous les auteurs :
Ricci L, Joly F, Coly A, Guillemin F, Quilliot D
Lien Pubmed
Résumé
The standard treatment for short bowel syndrome is home parenteral nutrition. Patients' strict adherence to protocols is essential to decrease the risk of complications such as infection or catheter thrombosis. Patient training can even result in complete autonomy in daily care. However, some patients cannot or do not want too much responsibility. However, doctors often encourage them to acquire these skills. Based on qualitative investigations with patients, we wanted to document issues of importance concerning perceptions of autonomy in daily care.
Référence
Eur J Clin Nutr. 2024 02 29;: