The biological sample collection of the OFSEP French MS registry: An essential tool dedicated to researchers.
Fiche publication
Date publication
juillet 2023
Journal
Multiple sclerosis and related disorders
Auteurs
Membres identifiés du Cancéropôle Est :
Pr GUILLEMIN Francis, Pr DE SEZE Jérôme
Tous les auteurs :
Brocard G, Casey R, Dufay N, Marignier R, Michel L, Hisbergues M, Ayrignac X, Lehmann S, Thouvenot E, Gallot G, Collongues N, Herpe YE, Lebrun-Frenay C, Cotton F, De Sèze J, Guillemin F, Moreau T, Pelletier J, Stankoff B, Vukusic S, Zephir H, Laplaud D,
Lien Pubmed
Résumé
Today's medicine strives to be personalized, preventive, predictive and participatory. This implies to have access to multimodal data to better characterize patients groups and to combine clinical and imaging data with high-quality biological samples. Collecting such data is one of the objectives of the Observatoire français de la sclérose en plaques (OFSEP), the French MS registry. On December 2022, the OFSEP biocollection includes 4,888 patients with scientific characteristics and about 90,000 samples. Thanks to its richness, this biocollection open for the scientific community, contributes to address unmet needs in MS through identification of multiomics determinants of MS activity, progression and secondary effects.
Mots clés
Biobank, Database, Multiple sclerosis, Quality, Registry, Sample
Référence
Mult Scler Relat Disord. 2023 07 7;77:104872