Born in the UK: A registry to improve and broadcast knowledge on Waldenström macroglobulinaemia.
Fiche publication
Date publication
février 2023
Journal
British journal of haematology
Auteurs
Membres identifiés du Cancéropôle Est :
Pr DELMER Alain
Tous les auteurs :
Durot E, Delmer A
Lien Pubmed
Résumé
Registries constitute an interesting source of real-world data and bring complementary information to randomised controlled trials. They are of particular importance in rare diseases such as Waldenström macroglobulinaemia (WM), which can present with various clinical and biological features. In their paper Uppal and colleagues describe the development of the Rory Morrison Registry, the UK registry for WM and IgM-related disorders and highlight the profound changes in therapies both at first-line and relapsed settings in the recent years. Commentary on: Uppal E. et al. The WMUK Rory Morrison Registry for Waldenström Macroglobulinaemia: the growth of a national registry for a rare disorder. Br J Haematol. 2023 (Online ahead of print). doi: 10.1111/bjh.18680.
Mots clés
IgM-related disorder, Waldenström macroglobulinaemia, real-world data, registry
Référence
Br J Haematol. 2023 02 16;: