The quality of life in genetic neuromuscular disease questionnaire: Rasch validation of the French version.
Fiche publication
Date publication
février 2017
Journal
Muscle & nerve
Auteurs
Membres identifiés du Cancéropôle Est :
Pr JOLLY Damien
Tous les auteurs :
Dany A, Rapin A, Lavrard B, Saoût V, Réveillère C, Bassez G, Tiffreau V, Péréon Y, Sacconi S, Eymard B, Dramé M, Jolly D, Novella JL, Hardouin JB, Boyer FC
Lien Pubmed
Résumé
Slowly progressive, genetic neuromuscular diseases (gNMDs) often lead to important motor deficiencies and functional limitations. The Quality of Life in Genetic Neuromuscular Disease Questionnaire (QoL-gNMD) is a new health-related quality-of-life questionnaire developed for these patients. The purpose of the present study was to validate the French version of the QoL-gNMD and to calibrate its measurement system.
Mots clés
Rasch model, item response theory, neuromuscular diseases, patient-centered outcomes, quality of life
Référence
Muscle Nerve. 2017 Feb;: