Observatoire Français de la Sclérose en Plaques (OFSEP): A unique multimodal nationwide MS registry in France.
Fiche publication
Date publication
décembre 2018
Journal
Multiple sclerosis (Houndmills, Basingstoke, England)
Auteurs
Membres identifiés du Cancéropôle Est :
Pr GUILLEMIN Francis, Pr DE SEZE Jérôme
Tous les auteurs :
Vukusic S, Casey R, Rollot F, Brochet B, Pelletier J, Laplaud DA, De Sèze J, Cotton F, Moreau T, Stankoff B, Fontaine B, Guillemin F, Debouverie M, Clanet M
Lien Pubmed
Résumé
The care of multiple sclerosis (MS) in France is based on two complementary interlinked networks: MS expert centers in university hospitals and regional networks of neurologists. The routine use of European database for multiple sclerosis (EDMUS) in all those centers has paved the way for the constitution of a national registry, designated as Observatoire Français de la Sclérose En Plaques (OFSEP). It promotes a prospective, standardized, high-quality, and multimodal collection of data. On June 2018, there were 68.097 files, with 71.1% females, representing 761,185 person-years. This huge database is open to the scientific community and might contribute exploring unresolved issues and unmet needs in MS.
Mots clés
Multiple sclerosis, database, epidemiology, quality, registry
Référence
Mult. Scler.. 2018 Dec 13;:1352458518815602