International development of a lupus-specific instrument to assess cognitive symptoms in patients with SLE: Lupus Brain Fog Severity Scale (LBFSS) study.

Date publication

juillet 2026

Journal

Lupus science & medicine

Auteurs

Membres identifiés du Cancéropôle Est :
Dr DEVILLIERS Hervé

Tous les auteurs :
Arnaud L, Piga M, Pons-Estel GJ, Fuentes-Silva YJ, Devilliers H, Faria R, Duarte-Garcia A, Guimarães de Oliveira D, Scolnik M, van Leuven S, Smith E, Appenzeller S, Padjen I, Petri MA, Bortoluzzi A, Parodis I, Mackay M, Parlindungan F, Monticielo OA, Fanouriakis A, Kleitz C, Knight AM, Philippi N, Hoi A, Karakikla-Mitsakou Z, Silva Ribeiro S, Sluijmers A, Sturiene A, Touma Z

Lien Pubmed

https://www.ncbi.nlm.nih.gov/pubmed/42442803

Résumé

Cognitive symptoms such as 'brain fog' are frequent and disabling in patients with SLE. We aimed to develop and validate the Lupus Brain Fog Severity Scale (LBFSS), the first patient-reported outcome measure (PROM) for cognitive symptoms in SLE.

Mots clés

Autoimmune Diseases, Health-Related Quality Of Life, Patient Reported Outcome Measures, Systemic Lupus Erythematosus

Référence

Lupus Sci Med. 2026 07 13;13(2):