Fiche publication
Date publication
juillet 2026
Journal
Rheumatology (Oxford, England)
Auteurs
Membres identifiés du Cancéropôle Est :
Dr DEVILLIERS Hervé
Tous les auteurs :
Arnaud L, Sander O, Damian L, Pamfil C, Crisafulli F, Faria R, Silva-Ribeiro S, Piette JC, Mathian A, Ferrada M, Shimizu J, Sharma A, Kawka L, Sztejkowski C, Dusing C, Rose T, Lamas A, Vasconcelos C, Semeraro P, Pozzi AC, Neagu T, Resteu M, Armengou A, Perez Jaen ADC, Policarpo Torres G, Devilliers H, Matthews L, Bucsa C, Rednic S, Mertz P,
Lien Pubmed
Résumé
Relapsing polychondritis (RP) is a rare, multisystem inflammatory disease characterized by heterogeneous clinical manifestations and a substantial impact on patients' daily functioning and well-being. Health-related quality of life (HR-QoL) in RP remains insufficiently characterized, and no disease-specific measurement tool is available so far. This study aimed to develop and validate the RP-QoL, a multilingual, patient-reported outcome instrument specifically designed to assess HR-QoL in individuals with RP.
Mots clés
Quality of life, Relapsing polychondritis, instrument, patients
Référence
Rheumatology (Oxford). 2026 07 1;:
