Acceptability and feasibility of a community-hospital parenting support and prevention programme for families of infants at high neurodevelopmental risk following neonatal encephalopathy: protocol of the PRePaR (PRevention and support for Parenthood in ea

Fiche publication

Date publication

mars 2026

Journal

BMJ open

Auteurs

Membres identifiés du Cancéropôle Est :
Dr FOURNEL Isabelle , Pr ORNETTI Paul , Dr GUEUGNON Mathieu , Dr MEUNIER-BEILLARD Nicolas

Tous les auteurs :
Fromion C, Krumm S, Jandet S, Ksiazek E, Gueugnon M, Ornetti P, Meunier-Beillard N, Fournel I

Lien Pubmed

https://www.ncbi.nlm.nih.gov/pubmed/41819586

Résumé

Neonatal encephalopathy, particularly situations involving neonatal hypoxic-ischaemic encephalopathy (NHIE) and neonatal stroke (NS), covers complex neonatal conditions associated with a risk of neurodevelopmental difficulties. Early prevention programmes have shown benefits for neurodevelopment, but few address both NHIE and NS populations. Following an initial joint development phase with families and professionals, we identified two areas of intervention: (1) Making infant care and referral more streamlined and (2) Increasing parent empowerment. The PRevention and support for Parenthood in an early Rehabilitation programme is a multidisciplinary intervention initiated in the neonatal intensive care unit and continuing at home until the infant reaches a corrected age of 4 months. Its objectives are to: (1) Ensure that the family environment is adapted to the child's needs, (2) Introduce parents to digital support suggesting information on the care pathway and developmental interventions, (3) Maintain continuity of care and (4) Maximise early detection by sharing videos for analysis of the child's movements.