Fiche publication
Date publication
janvier 2026
Journal
European journal of cancer (Oxford, England : 1990)
Auteurs
Membres identifiés du Cancéropôle Est :
Dr DABAKUYO-YONLI Sandrine
Tous les auteurs :
Engele VI, Vassiliou V, Wheelwright S, Sztankay M, Puglisi C, Pogoda K, van Leeuwaarde R, Bleiker E, Abdel-Razeq H, Fox L, Lanceley A, Dabakuyo S, Bjelic-Radisic V, Nordin A, Ioannidis G, Kulís D, Brédart A, Schwaninger G, Arraras JI, Holzner B, Oberguggenberger AS,
Lien Pubmed
Résumé
The aim of this study is to develop a European Organisation of Research and Treatment of Cancer (EORTC) patient-reported outcome measure (PROM) to assess quality of life (QOL) in individuals diagnosed with a hereditary cancer predisposition syndrome (HCPS) with or without a previous cancer diagnosis. We report on content generation, questionnaire construction, and questionnaire evaluation of acceptability, comprehensiveness, and linguistic validity.
Mots clés
Cancer risk, Genetic counseling, Genetic testing, Hereditary cancer predisposition syndrome, Patient-reported outcomes, Quality of life, Questionnaire
Référence
Eur J Cancer. 2026 01 9;235:116226
