Determinants of fatigue in patients with Marfan syndrome: a study using PROMS.

Date publication

juillet 2025

Journal

Orphanet journal of rare diseases

Auteurs

Membres identifiés du Cancéropôle Est :
Pr FAIVRE Laurence

Tous les auteurs :
Cavalier I, Kamga LT, Morin L, Bal L, Faivre L, Jondeau G, Tran VT, Milleron O

Lien Pubmed

https://www.ncbi.nlm.nih.gov/pubmed/40646614

Résumé

Fatigue is often reported by individuals with Marfan syndrome (MFS). However, the determinants of fatigue and its impact on the daily lives of patients with MFS remain poorly understood. We sought to assess the level of fatigue and its determinants in individuals with MFS.

Mots clés

Humans, Marfan Syndrome, physiopathology, Female, Fatigue, physiopathology, Male, Cross-Sectional Studies, Middle Aged, Adult, Surveys and Questionnaires, Quality of Life, Pain

Référence

Orphanet J Rare Dis. 2025 07 11;20(1):359