Patient-Centered Education Through A Massive Open Online Course (MOOC) for Patients With Multiple Myeloma and Caregivers: Descriptive Study of Knowledge Gains by French Association of Patients With Multiple Myeloma (AF3M) and French-Speaking Myeloma Inter

Fiche publication

Date publication

février 2026

Journal

JMIR formative research

Auteurs

Membres identifiés du Cancéropôle Est :
Dr SONNTAG Cécile

Tous les auteurs :
Talbot A, Delcour B, Gillot L, Arnulf B, Avet Loiseau H, Boccaccio C, Frenzel L, Karlin L, Kraeuter K, Macro M, Mohty M, Perrot A, Touzeau C, Sonntag C, Hulin C, Moreau P, Decaux O

Lien Pubmed

https://www.ncbi.nlm.nih.gov/pubmed/41740161

Résumé

Multiple myeloma (MM) is a chronic hematologic malignancy characterized by complex therapeutic strategies, repeated relapses, and substantial information and psychosocial needs. Advances in oral therapies and outpatient management have shifted greater responsibility to patients and caregivers, emphasizing the need for accessible, high-quality educational resources. Therapeutic patient education (TPE) aims to empower patients to understand and manage their condition more effectively. Digital education tools such as massive open online courses (MOOCs) represent an innovative approach to deliver structured, interactive, and scalable learning experiences to large patient populations. However, few MOOCs have been specifically designed for patients with oncological or hematological disorders, and even fewer have been rigorously evaluated for their educational impact.