French consensus statement on transition of adolescent and young adults with rare pulmonary disease from paediatric to adult care: a Delphi method study.

Date publication

novembre 2025

Journal

ERJ open research

Auteurs

Membres identifiés du Cancéropôle Est :
Dr BELTRAMO Guillaume

Tous les auteurs :
Peulier-Maitre E, Goutaki M, Nathan N, Patout M, Amedro P, Beltramo G, Blonde A, Bonnet D, Borie R, Bruneaux C, Carlier-Gonod A, Coatrieux V, Cros P, Douvry B, Dubus JC, Dufeu N, Dulac Y, Ferry M, Girardon D, Gonsseaume S, Grange AC, Hameury F, Jaffre S, Ladouceur M, Llerena C, Madaoui F, Manali E, Mellerio H, Mittaine M, Morsa M, Papon JF, Schwartz E, Sitbon O, Szezepanski I, Tessier M, Werck-Gallois MC, Zemouri M, Hascoet S, Remus N, Thouvenin G

Lien Pubmed

https://www.ncbi.nlm.nih.gov/pubmed/41367677

Résumé

Transition of adolescents with chronic diseases to adult care is at risk of health complications and loss of medical follow-up. There is currently no official general consensus specific to rare pulmonary diseases. We aimed at setting up a consensus of experts to establish a consensus statement for the transition of patients with rare pulmonary diseases in France.

Référence

ERJ Open Res. 2025 11;11(6):