Exploring quality of life in people with slowly-progressive neuromuscular disease.

Date publication

juin 2017

Journal

Disability and rehabilitation

Auteurs

Lien Pubmed

https://www.ncbi.nlm.nih.gov/pubmed/27342814

Résumé

A qualitative work is conducted to enable later the construction of a health-related quality of life (HRQL) questionnaire for patients with slowly-progressive neuromuscular disease (NMD) such as myopathies and muscular dystrophies.

Mots clés

Focus group, neuromuscular disease, patient-reported outcome, qualitative study, quality of life

Référence

Disabil Rehabil. 2017 Jun;39(13):1262-1270